Our goal is to raise
awareness and promote research for
Prader-Willi Syndrome, or PWS.
PWS is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior. It is typically characterized by low muscle tone, short stature, cognitive disabilities, problem behaviors, and the hallmark characteristics-- involuntary and uncontrollable chronic feelings of hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity.
Those who have PWS need intervention and strict external controls, including padlocking access to food, to maintain normal weight and to help save their lives.
It is estimated that one in 12,000 to 15,000 people has PWS. PWS is a lifelong condition in which there is no known cure, YET!
He humbled you, causing you to hunger and then feeding you with manna, which neither you nor your ancestors had known, to teach you that man does not live on bread alone but on every word that comes from the mouth of the LORD.
If you wish to support PWS research, you can make donations: online, mail, electronic funds transfer, wire transfer or by phone. Click here for more about making donations direct to the University of Kansas Endowment for Prader Willi Syndrome research, click here.
To make an online donation to Prayer Will Support PWS Group, click here. From that page, click on the "online" link. Enter Prader- Willi Research select make a gift. Fill in all of your information. At the bottom it has a Memory or Honor of someone. Click on it and enter the name of the child you would like to honor (i.e., Kyleigh Ellington) Select Yes to notify someone of gift.
If you have any questions about donations, please contact:
The Prayer Will Support- PWS Organization
Attention: Krystal Ellington
P.O. Box 79
Corder, MO 64021