Joined Mar 14 2012
29 years old
My name is Jamie and this coming May my niece Kyleigh will be turning two. We found out about Kyleigh being a PWS baby shortly after she was born. Honestly, none of us really knew what PWS was until then. Blessed with amazing parents this is probably the happiest little girl you could ever meet. I can't tell you how many times a day I thank God for her.
She has been through so much already but just by looking at her you would never guess. For only being two, she is a fighter! Helping my sister Krystal and brother-in-law Mark with the walks means alot to me because I know I am doing my best to give her a chance for better medical care down the road, no matter how small of a part it may be.
I wish I could take any pain away this causes Kyleigh, although, I also wouldn't change her for the world because I know everything happens for a reason and God has a plan for her and she is exactly how God wanted her to be. Praying for a cure and hoping research down the road is able to help in some way, shape, or form; but until then I am the proud aunt of a beautiful little girl that one smile can make your day all better.
Love you Kyleigh!!!!